Abstract
There has been considerable academic interest in how people living with HIV use the internet for online dating and sex seeking. Most of this work has focused on the relationship between internet use and the risk of viral transmission. Drawing on an analysis of HIV dating websites and interviews with women living with HIV, this article moves beyond this and connects the use of dating websites with the changing dynamics of what constitutes a ‘normal’ life with HIV in the ‘post-AIDS’ era. The use of these websites is situated within a broader ethics of intimacy in which people living with HIV are told they are able to develop ‘normal’ sexual/romantic relationships, yet their right to do so is contingent on them pro-actively protecting others from infection. The disclosure of an HIV-positive status and the selection of HIV-positive partners are explored as key mechanisms for preventing the spread of the virus while enabling people ‘living with HIV’ to form intimate relations, ‘sharing the virus’ in other ways – practices conceptualised here as ‘viral-sociality’. Throughout the discussion attention is drawn to how sexual relations, clinical encounters and HIV-related criminal prosecutions intersect in this field, such that the most private aspects of ‘living with’ the virus can at the same time be the most public.
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Notes
Forty-one women were interviewed during the course of 2009. Interviewees came from 13 different countries: Angola, Burundi, Democratic Republic of Congo, Gambia, Ghana, Kenya, Nigeria, Sierra Leone, Somalia, South Africa, Uganda, Zambia and Zimbabwe, and had diverse cultural and linguistic backgrounds. All of the interviewees were black African, and had been living in the United Kingdom for differing lengths of time and had different immigration statuses. Some were European passport holders or permanent residents; others were on student or work visas, were asylum seekers or had other unresolved immigration statuses.
At the time of writing, according to the latest figures from the Health Protection Agency approximately 15 400 of the 69 250 people diagnosed with HIV in the United Kingdom are African-born women. This is less than the number of MSM (29 800) and over double the number of African-born heterosexual men diagnosed (7300). For latest figures and detail about these statistics see the HIV section of the Health Protection Agency website: www.hpa.org.uk/Topics/InfectiousDiseases/InfectionsAZ/HIV.
References
Baker, A. (2000) Two by two in cyberspace: Getting together and connecting online. CyberPsychology and Behavior 3 (2): 237–242.
Benotsch, E.G., Kalichman, S.C. and Cage, M. (2002) Men who have met sex partners via the Internet: Prevalence, predictors, and implications for HIV prevention. Archives of Sexual Behaviour 31 (2): 177–183.
Bernard, E.J. (2009) Swiss court accepts that criminal HIV exposure is only ‘hypothetical’ on successful treatment, quashes conviction. aidsmap.com. Available online at: www.aidsmap.com/page/1433648/.
Bolding, G., Davis, M., Hart, G., Sherr, L. and Elford, J. (2005) Gay men who look for sex on the Internet: Is there more HIV/STI risk with online partners? AIDS 19 (9): 961–968.
Clarke, A. (1994) What is a chronic disease? The effects of a re-definition in HIV and AIDS. Social Science & Medicine 39 (4): 591–597.
Cline, R. and McKenzie, N. (2000) Dilemmas of disclosure in the age of HIV/AIDS: Balancing privacy and protection in the healthcare context. In: S. Petronio (ed.) Balancing the Secrets of Private Disclosure. New Jersey: Lawrence Erlbaum Associates.
Davis, M., Hart, G., Bolding, G., Sherr, L. and Elford, J. (2006) E-dating, identity and HIV prevention: Theorising sexualities, risk and network society. Sociology of Health & Illness 28 (4): 457–478.
Dean, T. (2009) Unlimited Intimacy: Reflections on the Subculture of Barebacking. Chicago, IL: Chicago University Press.
Dodds, C., Bourne, A. and Weait, M. (2009) Responses to criminal prosecutions for HIV transmission among gay men with HIV in England and Wales. Reproductive Health Matters 17 (34): 135–145.
Dowsett, G.W. and McInnes, D. (1996) ‘Post-AIDS’: Assessing the long-term social impact of HIV/AIDS in gay communities. XI International Conference on AIDS. Vancouver, 7–12 July 1996.
Doyal, L. (2009) Challenges in researching life with HIV/AIDS: An intersectional analysis of black African migrants in London. Culture, Health & Sexuality 11 (2): 173–188.
Doyal, L. and Anderson, J. (2005) ‘My fear is to fall in love again’ how HIV-positive African women survive in London. Social Science & Medicine 60 (8): 1729–1738.
Doyal, L., Anderson, J. and Paparini, S. (2009) ‘You are not yourself’: Exploring masculinities among heterosexual African men living with HIV in London. Social Science & Medicine 68 (10): 1901–1907.
Elford, J., Ibrahim, F., Bukutu, C. and Anderson, J. (2008) Disclosure of HIV status: The role of ethnicity among people living with HIV in London. Journal of Acquired Immunodeficiency Syndrome 47 (4): 514–521.
Ellison, N., Heino, R. and Gibbs, J. (2006) Managing impressions online: Self-presentation processes in the online dating environment. Journal of Computer-mediated Communication 11 (2): 415–441.
Fakoya, A. et al (2008) British HIV Association, BASHH and FSRH guidelines for the management of the sexual and reproductive health of people living with HIV infection 2008. HIV Medicine 9 (9): 681–720.
Fiore, A.T. and Donath, J.S. (2005) Homophily in online dating: When do you like someone like yourself?. In CHI’05 extended abstracts on Human factors in computing systems. ACM, p. 1374. Doi: 10.1145/1056808.1056919.
Garnett, G.P. and Gazzard, B. (2008) Risk of HIV transmission in discordant couples. The Lancet 372 (9635): 270–271.
Greene, K., Derlega, V.J., Yep, G.A. and Petronio, S. (2003) Privacy and Disclosure of HIV in Interpersonal Relationships: A Sourcebook for Researchers and Practitioners. New Jersey: Laurence Erlbaum Associates.
Hancock, J.T. and Toma, C.L. (2009) Putting your best face forward: The accuracy of online dating photographs. Journal of Communication 59 (2): 367–386.
Jenness, S.M., Neaigus, A., Hagan, H., Wendel, T., Gelpi-Acosta, C. and Murrill, C.S. (2010) Reconsidering the Internet as an HIV/STD risk for men who have sex with men. AIDS & Behavior 14 (6): 1–9.
Kalichman, S.C., Rompa, D., Webster, L. and Austin, J. (2002) HIV transmission risk behaviours among HIV-positive persons in serodiscordant relationships. International Journal of STD & AIDS 13 (10): 677–682.
Kippax, S. and Race, K. (2003) Sustaining safe practice: Twenty years on. Social Science & Medicine 57 (1): 1–12.
Lakoff, A. and Collier, S.J. (2004) Ethics and the anthropology of modern reason. Anthropological Theory 4 (4): 419–434.
Latour, B. (2002) Morality and technology: The end of the means. Theory, Culture & Society 19 (5/6): 247–260.
Latour, B. (2005) Reassembling the Social: An Introduction to Actor-network Theory. Oxford: Oxford University Press.
Lawson, H.M. and Leck, K. (2006) Dynamics of Internet dating. Social Science Computer Review 24 (2): 189–208.
Light, B., Fletcher, G. and Adam, A. (2008) Gay men, Gaydar and the commodification of difference. Information Technology & People 21 (3): 300–314.
Mann, J. and Kay, K. (1991) Confronting the pandemic: The World Health Organization's Global Programme on AIDS 1986–1989. AIDS 5 (2): 221–229.
Mowlabocus, S. (2010) Gaydar Culture: Men, Technology and Embodiment in the Digital Age. Farnham, UK: Ashgate.
Palmer, R. and Bor, R. (2001) The challenges to intimacy and sexual relationships for gay men in HIV serodiscordant relationships: A pilot study. Journal of Marital and Family Therapy 27 (4): 419–431.
Persson, A. and Newman, C. (2008) Making monsters: Heterosexuality, crime and race in recent western media coverage of HIV. Sociology of Health & Illness 30 (4): 632–646.
Petronio, S. (2002) Boundaries of Privacy: Dialectics of Disclosure. New York: State University of New York Press.
Rabinow, P. (ed.) (1996) Artificiality and enlightenment: From sociobiology to biosociality. In: Essays on the Anthropology of Reason. New Jersey: Princeton University Press, pp. 91–111.
Race, K. (2010) Click here for HIV status: Shifting templates of sexual negotiation. Emotion, Space & Society 3 (1): 7–14.
Rege, A. (2009) What's love got to do with it? Exploring online dating scams and identity fraud. International Journal of Cyber Criminology 3 (3): 494–512.
Rhodes, T. and Cusick, L. (2000) Love and intimacy in relationship risk management: HIV positive people and their sexual partners. Sociology of Health & Illness 22 (1): 1–26.
Richters, J., Hendry, O. and Kippax, S. (2003) When safe sex isn’t safe. Culture, Health & Sexuality 5 (1): 37–52.
Ridge, D., Ziebland, S., Anderson, J., Williams, I. and Elford, J. (2007) Positive prevention: Contemporary issues facing HIV positive people negotiating sex in the UK. Social Science & Medicine 65 (4): 755–770.
Rier, D. (2007) Internet social support groups as moral agents: The ethical dynamics of HIV+ status disclosure. Sociology of Health & Illness 29 (7): 1043–1058.
Rose, N.S. (2007) The Politics of Life Itself: Biomedicine, Power, and Subjectivity in the Twenty-first Century. New Jersey: Princeton University Press.
Rose, N.S. and Novas, C. (2005) Biological citizenship. In: A. Ong and S.J. Collier (eds.) Global Assemblages: Technology, Politics, and Ethics as Anthropological Problems. Oxford: Blackwell, pp. 439–463.
Rosengarten, M. (2009) HIV Interventions: Biomedicine and the Traffic between Information and Flesh. Seattle, Washington DC: University of Washington Press.
Ross, M.W., Rosser, B.R.S., Coleman, E. and Mazin, R. (2006) Misrepresentation on the Internet and in real life about sex and HIV: A study of Latino men who have sex with men. Culture, Health & Sexuality 8 (2): 133–144.
Slavin, S., Richters, J. and Kippax, S. (2004) Understandings of risk among HIV: Seroconverters in Sydney. Health, Risk & Society 6 (1): 39–52.
Squire, C. (2003) Can an HIV-positive woman find true love? Romance in the stories of women living with HIV. Feminism & Psychology 13 (1): 73–100.
Stevens, P.E. and Galvao, L. (2007) ‘He won’t use condoms’: HIV-infected women's struggles in primary relationships with serodiscordant partners. American Journal of Public Health 97 (6): 1015–1022.
Tashima, K.T., Alt, E.N., Harwell, J.I., Fiebich-Perez, D.K. and Flanigan, T.P. (2003) Internet sex-seeking leads to acute HIV infection: A report of two cases. International Journal of STD & AIDS 14 (4): 285–286.
Toma, C.L., Hancock, J.T. and Ellison, N.B. (2008) Separating fact from fiction: An examination of deceptive self-presentation in online dating profiles. Personality and Social Psychology Bulletin 34 (8): 1023–1036.
Van Der Straten, A., Vernon, K.A., Knight, K.R., Gomex, C.A. and Padian, N.S. (1998) Managing HIV among serodiscordant heterosexual couples: Serostatus, stigma and sex. AIDS Care 10 (5): 533–548.
Vernazza, P., Hirschel, B., Bernasconi, E. and Flepp, M. (2008) Les personnes séropositives ne souffrant d’aucune autre MST et suivant un traitment antirétroviral efficace ne transmettent pas le VIH par voie sexuelle. Bulletin des médecins suisses 89 (5): 165–169.
Walque, D.D. (2007) Sero-discordant couples in five African countries: Implications for prevention strategies. Population & Development Review 33 (3): 501–523.
Weait, M. (2007) Intimacy and Responsibility: The Criminalisation of HIV Transmission. London: Routledge.
Whitty, M. and Carr, A.N. (2006) Cyberspace Romance: The Psychology of Online Relationships. Basingstoke, UK: Palgrave Macmillan.
Whitty, M.T., Baker, A.J. and Inman, J.A. (2007) Online Matchmaking. Basingstoke, UK: Palgrave Macmillan.
Acknowledgements
I thank all the participants who took part in the research, the health-care practitioners who provided support and assistance, especially Dr Jane Anderson, and the community groups and content providers (Avert, Body & Soul, i-Base, NAM, Positive East, The Terrence Higgins Trust and The Rain Trust) who took part in interviews and/or hosted focus groups. Without your contribution this work would not have been possible. I also thank the anonymous reviewers for their constructive input and the many people who provided feedback on earlier versions of the article: Andy Byford, Noortje Marres, Chrysanthi Papoutsi, Sara Paparini, Marsha Rosengarten, Nick Shapiro and Steve Woolgar. I gratefully acknowledge the financial support that was provided by the EPSRC Privacy Value Networks Project (EP/G002606/1).