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New modes of understanding and acting on human difference in autism research, advocacy and care: Introduction to a Special Issue of BioSocieties

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Abstract

The papers collected in this special issue examine specific instances of autism research, treatment and advocacy. Their shared aim is to explore not the causes, but the manifold biosocial consequences and theoretical implications of the recent expansion of the autism spectrum. Three such implications are singled out in the introduction as common threads running through all the papers. First, the extent to which developments in the field of autism research, treatment and advocacy pose a challenge to theories of ‘biomedicalization’ and ‘geneticization’. Second, the intimate connection between autism’s recalcitrance to be pinned down and explained and its enormous biosocial productivity. Third, the need to broaden Hacking’s (1998, 2006) concept of ‘looping’ to make sense of the ‘moving target’ that is autism.

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References

  • Baron-Cohen, S. (1999) The extreme-male-brain theory of autism. In: H. Tager-Flusberg (ed.) Neurodevelopmental Disorders. Cambridge, MA: MIT Press.

    Google Scholar 

  • Baron-Cohen, S., Wheelwright, S., Skinner, R., Martin, J. and Clubley, E. (2001) The autism-spectrum quotient (AQ): evidence from Asperger Syndrome/high-functioning autism, males and females, scientists and mathematicians. Journal of Autism and Developmental Disorders 31 (1): 5–17.

    Article  Google Scholar 

  • Brown, N., Rappert, B. and Webster, A. (eds.) (2000) Introducing contested futures: From looking into the future to looking at the future. In: Contested Futures: A Sociology of Prospective Techno-Science. Aldershot, UK: Ashgate.

    Google Scholar 

  • Clarke, A., Mamo, L., Fosket, J.R., Fishman, J.R. and Shim, J.K. (2010) Biomedicalization. Durham: Duke University Press.

    Google Scholar 

  • Eyal, G., Hart, B., Onculer, E., Oren, N. and Rossi, N. (2010) The Autism Matrix: The Social Origins of the Autism Epidemic. Malden, MA: Polity Press.

    Google Scholar 

  • Galison, P. (1997) Image and Logic: A Material Culture of Microphysics. Chicago: University of Chicago Press.

    Google Scholar 

  • Gorman, M. (2010) Trading Zones and Interactional Expertise. Cambridge, MA: MIT Press.

    Book  Google Scholar 

  • Grinker, R. (2007) Unstrange Minds: Remapping the World of Autism. New York: Basic Books.

    Google Scholar 

  • Hacking, I. (1998) Rewriting the Soul. Princeton, NJ: Princeton University Press.

    Book  Google Scholar 

  • Hacking, I. (2006) Kinds of people: Moving targets. Proceedings of the British Academy 151: 285–318.

    Google Scholar 

  • Hedgecoe, A. (2001) Schizophrenia and the narrative of enlightened geneticization. Social Studies of Science 31 (6): 875–911.

    Article  Google Scholar 

  • van Lente, H. and Rip, A. (1998) Expectations in technological developments: An example of prospective structures to be filled by agency. In: C. Disco and B. ven der Meulen (eds.) Getting New Technologies Together: Studies in Making Sociotechnical Order. Berlin, Germany: De Gruyter.

    Google Scholar 

  • Lippmann, A. (1991) The geneticization of health and illness: Implications for social practice. Endocrinologie 29 (1–2): 85–90.

    Google Scholar 

  • Liu, K.-Y., King, M. and Bearman, P.S. (2010) Social influence and the autism epidemic. American journal of sociology 115 (5): 1387–1434.

    Article  Google Scholar 

  • MacKenzie, D. (2007) Is economics performative? In: D. MacKenzie, F. Muniesa and L. Siu (eds.) Do Economists Make Markets? Princeton, NJ: Princeton University Press.

    Google Scholar 

  • Merton, R. (1948) The self-fulfilling prophecy. Antioch Review 8 (2): 193–210.

    Article  Google Scholar 

  • Nadesan, M. (2005) Constructing Autism: Unraveling the ‘Truth’ and Understanding the Social. New York: Routledge.

    Google Scholar 

  • Navon, D. (2011) Genomic designation: How genetics can delineate new, phenotypically diffuse medical categories. Social Studies of Science 41 (2): 203–226.

    Article  Google Scholar 

  • Phelan, M.C. et al (2001) 22q13 deletion syndrome. American Journal of Medical Genetics 101 (2): 91–99.

    Article  Google Scholar 

  • Rabinow, P. (2005) Artificiality and enlightenment: From sociobiology to biosociality. In: J.X. Inda (ed.) Anthropologies of Modernity. Malden, MA: Blackwell.

    Google Scholar 

  • Sadakata, T. et al (2007) Autistic-like phenotypes in Cadps2-knockout mice and aberrant CADPS2 splicing in autistic patients. The Journal of Clinical Investigation 117 (4): 931–943.

    Article  Google Scholar 

  • Shattuck, P. (2006) The contribution of diagnostic substitution to the growing administrative prevalence of autism in US special education. Pediatrics 117 (4): 1028–1037.

    Article  Google Scholar 

  • Silverman, C. (2010) ‘Autism’s Prosaic Technologies’. Paper presented at the Critical Autism Studies Workshop, University of Ottawa, 24–25 September, 2010.

  • Silverman, C. (2012) Understanding Autism: Parents, Doctors, and the History of a Disorder. Princeton, NJ: Princeton University Press.

    Google Scholar 

  • Star, S.L. and Griesemer, J.R. (1989) Institutional ecology, ‘translations’ and boundary objects: Amateurs and professionals in Berkeley’s museum of vertebrate zoology, 1907–1939. Social Studies of Science 19 (3): 387–420.

    Article  Google Scholar 

  • Valverde, M. (1998) Diseases of the Will. New York: Cambridge University Press.

    Google Scholar 

  • van der Water, J. et al (2013) Autism-specific maternal autoantibodies recognize critical proteins in developing brain. Translational Psychiatry 3: e277, doi:10.1038/tp.2013.50.

Download references

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Correspondence to Gil Eyal.

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Eyal, G., Fitzgerald, D., Gillis-Buck, E. et al. New modes of understanding and acting on human difference in autism research, advocacy and care: Introduction to a Special Issue of BioSocieties. BioSocieties 9, 233–240 (2014). https://doi.org/10.1057/biosoc.2014.19

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  • DOI: https://doi.org/10.1057/biosoc.2014.19

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