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Identity and the health information consumer: a research agenda

  • Position Paper
  • Published:
Health Systems

Abstract

There is currently a need to better understand the impacts of emerging technologies used to support health and health information needs as they relate to users. In the discussion of health information searching behavior, human individual differences and identity are factors to be considered. Identity, specifically, is a key to understanding the health-related self-maintenance behaviors of individuals with a variety of illnesses. As a result, this position paper will identify a research program that supports the investigation of identity in the context of the human information consumer. A number of research questions will be posed that are meant to encourage further research, debate, and discussion around developing e-health technologies that are tailored to a patient’s individual health background and needs. Thus, beginning to situate the user appropriately within these characteristics is a challenge that will yield more understanding of the individual and increase the usability of the technology for health-related purposes.

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References

  • Allen D, Griffiths L and Lyne P (2004) Understanding complex trajectories in health and social care provision. Sociology of Health & Illness 26 (7), 1008–1030.

    Article  Google Scholar 

  • Aujoulat I, D’Hoore W and Deccache A (2007) Patient empowerment in theory and practice: polysemy or acophony? Patient Education and Counseling 66 (1), 13–20.

    Article  Google Scholar 

  • Baur C and Kanaan SB (2006) Expanding the reach and impact of consumer E-health tools. Office of Disease Prevention and Health Promotion, U.S. Department of Health and Human Services. http://www.health.gov/communication/ehealth/ehealthtools/default.htm, (accessed 6 October 2006).

  • Blumenthal D (2009) Stimulating the adoption of health information technology. New England Journal of Medicine 360 (15), 1477–1479.

    Article  Google Scholar 

  • Broom A (2005) Virtually healthy: the impact of internet use on disease experience and the doctor-patient relationship. Qualitative Health Research 15 (3), 325–345.

    Article  Google Scholar 

  • Castells M (1996) The Rise of the Network Society. Blackwell, Malden, MA.

    Google Scholar 

  • Cline RJW and Haynes KM (2001) Consumer health Information seeking on the internet: the State of the art. Health Education Research 16 (6), 671–692.

    Article  Google Scholar 

  • Diaz JA, Griffith RA, Ng JJ, Reinert SE, Friedmann PD and Moulton AW (2002) Patients’ use of the internet for medical information. Journal of General Internal Medicine 17 (3), 180–185.

    Article  Google Scholar 

  • Ford N, Miller D and Moss N (2005) Web search strategies and human individual differences: cognitive and demographic factors, internet attitudes and approaches. Journal of the American Society for the Information Science and Technology 56 (7), 741–756.

    Article  Google Scholar 

  • Fox S and Duggan M (2013) Health Online 2013. [WWW document] http://www.pewinternet.org/2013/01/15/health-online-2013/ (accessed 3 February 2014).

  • Ho LA, Kuo TH and Binshan L (2012) How social identification and trust influence organizational online knowledge sharing. Internet Research 22 (1), 4–28.

    Article  Google Scholar 

  • Iverson SA, Howard KB and Penney BK (2008) Impact of internet use on health related behaviors and the patient physician relationship: a survey-based study and review. Journal of the American Osteopath Association 108 (12), 699–711.

    Google Scholar 

  • Jack Jr. L, Liburd LC, Tucker P and Cockrell T (2014) Having their say: patients’ perspectives and the clinical management of diabetes. Clinical Therapy 36 (4), 4639–4676.

    Article  Google Scholar 

  • Josselson R (1987) Finding Herself. Pathways to Identity Development in Women. Jossey-Bass, San Francisco.

    Google Scholar 

  • Josselson R (1992) The Space Between us: Exploring the Dimensions of Human Relationships. Jossey-Bass, San Francisco.

    Google Scholar 

  • Keselman A, Logan R, Smith CA, Leroy G and Zeng-Treitler Q (2008) Developing informatics tools and strategies for consumer-centered health communication. Journal of the American Medical Informatics Association 15 (4), 473–783.

    Article  Google Scholar 

  • Kivits J (2004) Researching the informed patient. Information, Communication & Society 7 (4), 510–530.

    Article  Google Scholar 

  • Klein M, Ross F, Adams D and Gilbert C (1994) Effect of online literature searching on length of stay and patient care costs. Academy of Medicine 69 (6), 489–495.

    Article  Google Scholar 

  • Kvasny L, Trauth EM and Morgan A (2009) Power relations and information technology: the intersectionality of gender, race and class. Journal of Information, Communication and Ethics in Society 7 (2/3), 96–118.

    Article  Google Scholar 

  • Lahtiranta J (2009) Current challenges of personal health information management. Journal of Systems and Information Technology 11 (3), 230–243.

    Article  Google Scholar 

  • Mathews G (2000) Global Culture/Individual Identity: Searching for Home in the Cultural Supermarket. Routledge, London and New York.

    Book  Google Scholar 

  • Mesch G, Mano R and Tsamir J (2012) Minority status and health information search: a test of the social diversification hypothesis. Social Science and Medicine 75 (5), 854–858.

    Article  Google Scholar 

  • Morahan-Martin J (2004) How users find, evaluate, and use online health information: a cross-cultural review. CyberPsychology and Behavior 7 (5), 497–510.

    Article  Google Scholar 

  • Morgan A and Trauth E (2013) Socio economic influences on health information searching in the United States: the case of diabetes. Information, Technology and People 26 (4), 324–346.

    Article  Google Scholar 

  • Payton F, Kvasny L and Kiwanuka-Tondo J (2014) Black female college students’ health information needs in the context of HIV prevention. Internet Research 24 (4), 520–543.

    Article  Google Scholar 

  • Payton FC, Paré G, Rouge CML and Reddy M (2011) Health care IT: process, people, patients and interdisciplinary considerations. Journal of the Association of Information Systems 12 (2), i–xiii.

    Google Scholar 

  • Rozenbkranz N, Eckhardt A, Kühne M and Rosenkranz C (2013) Health information on the internet. State of the art and analysis. Business and Information Systems Engineering 5 (4), 259–274.

    Article  Google Scholar 

  • Song L and Chang T (2012) Do resources of network members help in help seeking? Social capital and health information search. Social Networks 34 (4), 658–669.

    Article  Google Scholar 

  • Tajfel H (1981) Human Groups and Social Categories. Cambridge University Press, Cambridge.

    Google Scholar 

  • Tajfel H and Turner JC (1986) The social identity theory of intergroup behavior. In: The Psychology of Intergroup Relations (Worchel S and Austin WG, Eds), pp 7–24, Nelson-Hall, Chicago.

    Google Scholar 

  • Tilden B, Charman D, Sharples J and Fosbury J (2005) Identity and adherence in a diabetes patient: transformations in psychotherapy. Qualitative Health Research 15 (3), 312–324.

    Article  Google Scholar 

  • Viswanath K and Ackerson LK (2011) Race, ethnicity, language, social class, and health communication inequalities: a nationally-representative cross-sectional study. PLoS One 6 (1), e14550.

    Article  Google Scholar 

  • Warren JR, Kvasny L, Hecht ML, Burgess D, Ahluwalia JS and Okuyemi KS (2009) Barriers, control and identity in health information seeking among African American women. Journal of Health Disparities Research and Practice 3 (3), 68–90.

    Google Scholar 

  • Weissberg-Benchell J, Wolpert H and Anderson BJ (2007) Transitioning from pediatric to adult care: a new approach to the post-adolescent young person with type 1 diabetes. Diabetes Care 30 (10), 2441–2446.

    Article  Google Scholar 

  • Wilson EV (2009) Patient-Centered E-Health. IGI Publications, Hershey, PA.

    Book  Google Scholar 

  • Wilson EV, Wang W and Sheetz S (2014) Underpinning a guiding theory of patient-centered E-health. Communications of the Association for Information Systems 34 (16), 338–350.

    Google Scholar 

  • Xiao N, Sharman R and Upadhyaya S (2014) Factors influencing online health information search: an empirical analysis of a national cancer-related survey. Decision Support Systems 57 (1), 417–427.

    Article  Google Scholar 

  • Ybarra M and Suman M (2008) Reasons, assessments and actions taken: sex and age differences in uses of internet health information. Health Education Research 23 (3), 512–521.

    Article  Google Scholar 

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Morgan, A. Identity and the health information consumer: a research agenda. Health Syst 5, 1–5 (2016). https://doi.org/10.1057/hs.2015.1

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  • DOI: https://doi.org/10.1057/hs.2015.1

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