TABLE 3
FROM:
Newborn Blood Spot Screening in Four Countries: Stakeholder Involvement
Beth K Potter, Denise Avard and Brenda J Wilson
BACK TO ARTICLETable 3. Professional physician associations: strategies for stakeholder participation used and recommended in newborn screening policy literature
| Strategies used |
| Direct input |
| Multi-stakeholder working groups involved in developing policy (6, 31) |
| Co-sponsorship of NBS Task Force with governmental and consumer/patient groups (31) |
| Indirect input |
| Policy informed by stakeholder surveys (29, 6) |
| Consultation |
| Opportunities for comment on draft documents (6) |
| Consultation with broad stakeholder communities in developing policy (31) |
| Strategies recommended * |
| General need for inclusive policy development, including governmental, health professional, patient/family, and citizen representation (31) |
| Need for provision of consumer feedback to NBS programs (6) |
| Need for multi-stakeholder advisory committees or boards (6, 31, 55) |
| Need for public information/education (31, 55) |
| Need for family involvement in developing NBS program educational materials (31) |
* We did not classify recommended strategies as "direct input", "indirect input" or "consultation", as recommendations tended to be too general for such categorization.
